Cramblett vs. Midwest Sperm Bank

Posted in Articles, Gay & Lesbian, Health/Medicine/Genetics, Law, Media Archive, United States on 2014-10-07 19:07Z by Steven

Cramblett vs. Midwest Sperm Bank

Marley-Vincent Lindsey
2014-10-07

Marley-Vincent Lindsey

I. Narratives and Political Order

On September 29, Jennifer L. Cramblett filed a suit against the Midwest Sperm Bank for “Wrongful Birth and Breach of Warranty against Defendant.” Where the expecting couple had picked a “blond hair blue-eyed individual” to resemble the non-biological partner, the mix-up had led to the conception of a bi-racial child. The basic grounds for the lawsuit are described in sections eight through sixteen. To summarize, the Sperm Bank had confused two sets of donors: Donor 380 and Donor 330. The confusion is explained in Section 21: “[The Records] are kept in pen and ink. To the person who sent Jennifer vials of sperm in September, 2011, the number “380” looked like “330,” and there are no redundancies to catch errors.”

Simply put, wrongful birth cases are a form of tort in which the claim for damages is based on the cost to parents of raising an “unexpectedly defective child.” Indeed, the term “defective child” is all over the relevant cases. “Wrongful Birth” on a whole has a long history of being associated with the parent’s right to information about their child before carrying it to term. In the words of BGD [Black Girl Dangerous]: “90 percent of fetuses testing positive for Down Syndrome will be aborted in the US. Eugenics cannot be our answer to ableism; advancing disability rights and justice should be.”

I don’t think this perspective ties us to the elimination of wrongful birth entirely. As one of the cases I’ll discuss later demonstrates, there are extreme cases in which a child may never live to see their fifth birthday. On a whole, however, wrongful birth is reflective of a structural consistency within systems to normalize their subjects. One of the many objectives of colonial ontologies is creating environments in which normalcy, through a number of repetitive subjects is preserved, at the cost not only of the value of diversity, but also the ability of subjects to make educated decisions about their own value. This is why I have a very difficult time assessing the development of colonial mentality in colonized subjects, despite the fact that most activists are ready to write such subjects off…

…I further have a specific interest in this regard: as a multi-racial child living with a white mother, I no doubt have a very close experience to what Peyton may know throughout her childhood. It is too easy to dismiss this narrative as simply one in which blackness is imposed on an otherwise white family. I think this is a mistake largely stemming from the structural intent on erasing multi-racial experiences. One only need recall the vitriol a certain Cheerios advertisement met to gain sense of mainstream conception of the mixed family. Calling again, Hardt and Negri, their chapter entitled “Symptoms of Passage” focuses on the irony in the relationship between postmodernism and Empire. Namely, that the former fails by only addressing the symptoms of the problem—the lack of pluralism in contemporary discourse, as an example—and completely misses the cause, which is the passage of power. In light of this chapter, I would suggest that the transition in contemporary race issues has been one in which the liberation movements of the late twentieth century sought to replicate the same power structures without regard to how those power structures would impact others…

Read the entire article here.

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Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan

Posted in Articles, Health/Medicine/Genetics, Media Archive on 2014-10-06 21:35Z by Steven

Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan

BMC Medical Ethics
Volume 15, Issue 1, December 2014
DOI: 10.1186/1472-6939-15-33

Yasuko Takezawa, Kazuto Kato, Hiroki Oota, Timothy Caulfield, Akihiro Fujimoto, Shunwa Honda, Naoyuki Kamatani, Shoji Kawamura, Kohei Kawashima, Ryosuke Kimura, Hiromi Matsumae, Ayako Saito, Patrick E Savage, Noriko Seguchi, Keiko Shimizu, Satoshi Terao, Yumi Yamaguchi-Kabata, Akira Yasukouchi, Minoru Yoneda, Katsushi Tokunaga

Background

A challenge in human genome research is how to describe the populations being studied. The use of improper and/or imprecise terms has the potential to both generate and reinforce prejudices and to diminish the clinical value of the research. The issue of population descriptors has not attracted enough academic attention outside North America and Europe. In January 2012, we held a two-day workshop, the first of its kind in Japan, to engage in interdisciplinary dialogue between scholars in the humanities, social sciences, medical sciences, and genetics to begin an ongoing discussion of the social and ethical issues associated with population descriptors.

Discussion

Through the interdisciplinary dialogue, we confirmed that the issue of race, ethnicity and genetic research has not been extensively discussed in certain Asian communities and other regions. We have found, for example, the continued use of the problematic term, “Mongoloid” or continental terms such as “European,” “African,” and “Asian,” as population descriptors in genetic studies. We, therefore, introduce guidelines for reporting human genetic studies aimed at scientists and researchers in these regions.

Conclusion

We need to anticipate the various potential social and ethical problems entailed in population descriptors. Scientists have a social responsibility to convey their research findings outside of their communities as accurately as possible, and to consider how the public may perceive and respond to the descriptors that appear in research papers and media articles.

…Another example of the challenges associated with the use of population descriptors can be found in the frequent use of the terms European, African, and Asian. These continental terms are tremendously broad in scope. At the Tokyo meeting, for example, it was noted that even among the Japanese researchers, there was no unitary understanding of what populations should be considered “Asian.”

More importantly, these terms can, in some contexts, be interpreted as referring to white, black, and Asian, the three classic, and socially constructed “races.” There continues to be a great deal of academic work that highlights the degree to which these broad “racial” categories are, in reality, social constructs. Although we should not overlook the correlation between “race” and socio-economic inequality involving factors such as health care and medical care, such discussion has usually arisen within the context of some North American and European societies. However, outside of these societies, the divergence between samples and population descriptors is also problematic. When the actual samples in the name of “European”, “African”, and “Asian” are taken from certain limited groups, without taking into account significant diversity within each region, it is unlikely that such broad terms have any scientific meaning, at least from the perspective of genetics on the global level. Moreover, the research results may be taken as supporting the classic “racial” categories, with any discovered “differences” misinterpreted as genetically determined “racial differences.”

The importance of the distinction between race and ethnicity cannot be overemphasized as the latter pays close attention to (presumably) shared cultural factors such as language, diet, and religion. When considering the contribution of environmental as well as genetic factors to diversity within each continental region, the scientific validity of the use of such broad terms to describe samples becomes even more questionable…

The above study highlights that even populations traditionally presumed to have a high degree of homogeneity may have local genetic differentiations, that make the use of broader population terms less scientifically or clinically relevant. Researchers should strive to select terms that, as much as possible, reflect the sample population and nature of each study. Since genetic subpopulation structure is still generally unknown, sampling without considering the specifics of the subject population could cause false positive results on risk alleles of diseases. In addition, differences in whole genome sequences between individuals belonging to different populations should not be overgeneralized and misinterpreted as population differences…

Read the entire article here.

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Born Champions [Full Episode]

Posted in Health/Medicine/Genetics, History, Interviews, Media Archive, Slavery, United States, Videos on 2014-10-02 01:45Z by Steven

Born Champions [Full Episode]

Finding Your Roots with Henry Louis Gates, Jr.
2014-09-30

Henry Louis Gates Jr., Host and Alphonse Fletcher University Professor and Director of the Hutchins Center for African and African American Research
Harvard University

Three of America’s greatest athletes, whose determination and love of sports were deeply shaped by their families, were all cut off from their true origins. Billie Jean King learns the story of her grandmother. Derek Jeter confronts his ancestors’ lives as slaves. Rebecca Lobo finds out that her Spanish ancestor fought side by side with a famous revolutionary.

Watch the full episode here.

Partial Transcript below:

GATES: I’M HENRY LOUIS GATES JR. WELCOME TO FINDING YOUR ROOTS.

TONIGHT, WE REVEAL THE ANCESTRY OF THREE OF AMERICA’S GREATEST ATHLETES: TENNIS LEGEND BILLIE JEAN KING, YANKEES ALL-STAR DEREK JETER, AND WOMEN’S BASKETBALL PIONEER REBECCA LOBO… ATHLETES WHOSE PURPOSE AND DRIVE WERE PROFOUNDLY SHAPED BY THEIR FAMILIES.

TO DISCOVER THEIR ANCESTORS, WE’VE USED EVERY TOOL AVAILABLE…

GENEALOGISTS HELPED STITCH TOGETHER THE PAST USING THE PAPER TRAIL THEIR FAMILIES LEFT BEHIND, WHILE GENETICISTS UTILIZED THE LATEST ADVANCES IN DNA ANALYSIS TO REVEAL SECRETS HUNDREDS OF YEARS OLD.

GATES: The answers are in this book…

GATES VO: AND WE’VE COMPILED EVERYTHING INTO A BOOK OF LIFE, A RECORD OF ALL OF OUR DISCOVERIES…

LOBO: I mean it’s just amazing to see her handwriting!

JETER: That’s unbelievable… all the way back to 1605!

BILLIE JEAN KING: This is from a bible?  Family…we have a family bible?

GATES: Mhm.

BILLIE JEAN KING: This (audio cuts off 1:01:04:12) is fantastic!

GATES: AS WE TRACE BILLIE JEAN, DEREK, AND REBECCA’S ROOTS, WE’LL EXPLORE HOW THEY BECAME CHAMPIONS, DID THEY COME TO GREATNESS THROUGH HARD WORK AND INDIVIDUAL EFFORT? IS THEIR TALENT SIMPLY ENCODED IN THEIR GENES? COULD IT BE, THESE THREE ATHLETES WERE MODELED IN WAYS THEY NEVER COULD HAVE IMAGINED? BY THE LIVES OF THEIR ANCESTORS.

ROOTS TITLE SEQUENCE…

…GATES VO: DEREK’S FATHER, CHARLES JETER, IS AFRICAN-AMERICAN AND HIS MOTHER, DOROTHY CONNORS, IS OF IRISH DESCENT. IT WASN’T EASY BEING THE CHILD OF A MIXED MARRIAGE. WHEN DEREK WAS YOUNG, HE OFTEN HAD TO FACE UNWANTED ATTENTION.

JETER: You know back in the day, yeah you’d get some second glances, people trying to figure out what the dynamic is there. And if you go somewhere with both of them, obviously you get some stares.

GATES: Mhm.

JETER: My parents tried to explain to us that it’s just people’s ignorance they’re not used to seeing it.

GATES: Did your parents take any flack?

JETER: I think when you’re a young child, I think your parents don’t necessarily tell you how difficult it was…

GATES: Yeah.

JETER: …on them. So, you know, a lot of their troubles that they went through, I’m sure they sheltered us from it.

GATES:  So when people come up to you and say, you know, “What are you?” what do you say?

JETER:  Black and Irish…

GATES: Black and Irish, that’s what you say?

JETER: Yeah, that’s, that’s what I believe I am but I don’t know much about my history…

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The Race Myth, Racial Disparities in Health, and Why There Are So Few African American Evolutionists

Posted in Anthropology, Health/Medicine/Genetics, Interviews, Media Archive, United States, Videos on 2014-10-02 01:11Z by Steven

The Race Myth, Racial Disparities in Health, and Why There Are So Few African American Evolutionists

Evolution: This View of Life
2012-02-24

David Sloan Wilson, Host and Distinguished Professor of Biology and Anthropology
State University of New York, Binghamton

Joseph L. Graves, Professor & Associate Dean for Research (author of The Race Myth: Why We Pretend Race Exists in America)
Joint School of Nanoscience and Nanoengineering
North Carolina A&T State University & University of North Carolina, Greensboro

In honor of Black History month, we are pleased to present an interview with Joseph L. Graves, a distinguished evolutionist and the first African American to earn a Ph.D. in evolutionary biology. Prof. Graves explains why race is a myth, despite the undeniable fact of local adaptation. He also discusses his own research on aging, how an evolution-savvy diet saved his life, and the surprising reason why African-Americans are even less well represented in evolutionary biology than they are in science.

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Lawsuit: Wrong sperm delivered to lesbian couple

Posted in Articles, Gay & Lesbian, Health/Medicine/Genetics, Law, United States on 2014-10-01 16:44Z by Steven

Lawsuit: Wrong sperm delivered to lesbian couple

The Chicago Tribune
2014-10-01

Meredith Rodriguez, Tribune reporter

A white Ohio woman is suing a Downers Grove-based sperm bank, alleging that the company mistakenly gave her vials from an African-American donor, a fact that she said has made it difficult for her and her same-sex partner to raise their now 2-year-old daughter in an all-white community.

Jennifer Cramblett, of Uniontown, Ohio, alleges in the lawsuit filed Monday in Cook County Circuit Court that Midwest Sperm Bank sent her the vials of an African-American donor’s sperm in September 2011 instead of those of a white donor that she and her white partner had ordered.

After searching through pages of comprehensive histories for their top three donors, the lawsuit claims, Cramblett and her domestic partner, Amanda Zinkon, chose donor No. 380, who was also white. Their doctor in Ohio received vials from donor No. 330, who is African-American, the lawsuit said.

Cramblett, 36, learned of the mistake in April 2012, when she was pregnant and ordering more vials so that the couple could have another child with sperm from the same donor, according to the lawsuit. The sperm bank delivered vials from the correct donor in August 2011, but Cramblett later requested more vials, according to the suit…

…”On August 21, 2012, Jennifer gave birth to Payton, a beautiful, obviously mixed-race baby girl,” the lawsuit states. “Jennifer bonded with Payton easily and she and Amanda love her very much. Even so, Jennifer lives each day with fears, anxieties and uncertainty about her future and Payton’s future.”

Raising a mixed-race daughter has been stressful in Cramblett and Zinkon’s small, all-white community, according to the suit. Cramblett was raised around people with stereotypical attitudes about nonwhites, the lawsuit states, and did not know African-Americans until she attended college at the University of Akron…

Read the entire article here.

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The Myth of Race: The Troubling Persistence of an Unscientific Idea

Posted in Anthropology, Books, Health/Medicine/Genetics, History, Media Archive, Monographs on 2014-10-01 16:04Z by Steven

The Myth of Race: The Troubling Persistence of an Unscientific Idea

Harvard University Press
October 2014
384 pages
6-1/8 x 9-1/4 inches
4 halftones, 2 line illustrations
Hardcover ISBN: 9780674417311

Robert Wald Sussman, Professor of Physical Anthropology
Washington University, St. Louis, Missouri

Biological races do not exist—and never have. This view is shared by all scientists who study variation in human populations. Yet racial prejudice and intolerance based on the myth of race remain deeply ingrained in Western society. In his powerful examination of a persistent, false, and poisonous idea, Robert Sussman explores how race emerged as a social construct from early biblical justifications to the pseudoscientific studies of today.

The Myth of Race traces the origins of modern racist ideology to the Spanish Inquisition, revealing how sixteenth-century theories of racial degeneration became a crucial justification for Western imperialism and slavery. In the nineteenth century, these theories fused with Darwinism to produce the highly influential and pernicious eugenics movement. Believing that traits from cranial shape to raw intelligence were immutable, eugenicists developed hierarchies that classified certain races, especially fair-skinned “Aryans,” as superior to others. These ideologues proposed programs of intelligence testing, selective breeding, and human sterilization—policies that fed straight into Nazi genocide. Sussman examines how opponents of eugenics, guided by the German-American anthropologist Franz Boas’s new, scientifically supported concept of culture, exposed fallacies in racist thinking.

Although eugenics is now widely discredited, some groups and individuals today claim a new scientific basis for old racist assumptions. Pondering the continuing influence of racist research and thought, despite all evidence to the contrary, Sussman explains why—when it comes to race—too many people still mistake bigotry for science.

Table of Contents

  • List of Abbreviations
  • Introduction
  • 1. Early Racism in Western Europe
  • 2. The Birth of Eugenics
  • 3. The Merging of Polygenics and Eugenics
  • 4. Eugenics and the Nazis
  • 5. The Antidote: Boas and the Anthropological Concept of Culture
  • 6. Physical Anthropology in the Early Twentieth Century
  • 7. The Downfall of Eugenics
  • 8. The Beginnings of Modern Scientific Racism
  • 9. The Pioneer Fund, 1970s–1990s
  • 10. The Pioneer Fund in the Twenty-First Century
  • 11. Modern Racism and Anti-Immigration Policies
  • Conclusion
  • Appendix A: The Eugenics Movement, 1890s–1940s
  • Appendix B: The Pioneer Fund
  • References
  • Acknowledgments
  • Index
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Finding Your Roots: The Official Companion to the PBS Series

Posted in Books, Health/Medicine/Genetics, History, Media Archive, Monographs, United States on 2014-10-01 14:51Z by Steven

Finding Your Roots: The Official Companion to the PBS Series

University of North Carolina Press
September 2014
352 pages
6.125 x 9.25, index
Cloth ISBN: 978-1-4696-1800-5

Henry Louis Gates Jr., Alphonse Fletcher University Professor and Director of the Hutchins Center for African and African American Research
Harvard University

Who are we, and where do we come from? The fundamental drive to answer these questions is at the heart of Finding Your Roots, the companion book to the PBS documentary series seen by 30 million people. As Harvard scholar Henry Louis Gates Jr. shows us, the tools of cutting-edge genomics and deep genealogical research now allow us to learn more about our roots, looking further back in time than ever before. Gates’s investigations take on the personal and genealogical histories of more than twenty luminaries, including United States Congressman John Lewis, actor Robert Downey Jr., CNN medical correspondent Sanjay Gupta, President of the “Becoming American Institute” Linda Chavez, and comedian Margaret Cho. Interwoven with their moving stories of immigration, assimilation, strife, and success, Gates provides practical information for amateur genealogists just beginning archival research on their own families’ roots, and he details the advances in genetic research now available to the public. The result is an illuminating exploration of who we are, how we lost track of our roots, and how we can find them again.

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Making the Mexican Diabetic: Race, Science, and the Genetics of Inequality by Michael J. Montoya (review) [Wentzell]

Posted in Anthropology, Articles, Book/Video Reviews, Health/Medicine/Genetics, Media Archive, United States on 2014-09-29 21:17Z by Steven

Making the Mexican Diabetic: Race, Science, and the Genetics of Inequality by Michael J. Montoya (review) [Wentzell]

The Americas
Volume 71, Number 1, July 2014
pages 179-181
DOI: 10.1353/tam.2014.0105

Emily Wentzell, Assistant Professor of Anthropology
University of Iowa

Montoya, Michael J., Making the Mexican Diabetic: Race, Science, and the Genetics of Inequality (Berkeley: University of California Press, 2011)

Michael J. Montoya investigates U.S.-based genetic research and discourse asserting Mexican-American susceptibility to type 2 diabetes, to reveal “the role of genetic research in the persistent use of race to divide populations in society at large” (p. 12). Montoya makes the importance of this project clear, situating it in a sociocultural context where genetics suffuse our understandings of humanness, identity, and sickness, and where folk taxonomies of race—which Montoya understands as embodiments of group-based oppression—are simultaneously contested and enduring. His chapters follow blood samples and their use from donation, though abstraction into datasets and analyses, to market and the popular cultural deployment of the scientific claims they generate. Montoya reveals how each of these moments entails the construction of scientific objects, including the recasting of borderlands residents who cannot afford healthcare as humanist donors, the elision of folk taxonomies of race into bodily attributes on the population level, and the construction of “the Mexican American population” as a homogenously admixed ethno-racial group. These chapters also illustrate the process of what Montoya terms “bioethnic conscription,” in which “ethnicity comes to be construed as meaningful for scientific research,” supporting genetic or clinical claims (p. 26) and obscuring the social origins of human difference and sickness. Overall, this book reveals how broader contexts of oppression lead well-meaning researchers to further the biologization of inequality into ethno-racial categories, which pathologize and homogenize the oppressed while obscuring the material causes of sickness.

This work builds on the best foundations from anthropology and STS, wedding attention to the co-construction of society and science with an anthropological eye to material and social realities. Montoya’s resistance to dualities when investigating science-race relationships is at the same time a resistance to reductionist traditions. Avoiding oppositions between biology and society, he productively frames biology as part of society to understand how embodied inequality can come to look like racial disease susceptibility, and how broader social phenomena, like the existence of racial labels, filter into biological research.

He similarly complicates debates about the use of race in science. Pointing out that scientists are themselves wary of naturalizing race, Montoya sees that simply identifying their failures is a dead end. Instead, he investigates how even those seeking to avoid biologizing folk taxonomies of race participate in broader cultural assemblages that reinforce them. His claims draw authority from his impressive engagement with scientific practice and fluency in the language of genetics, which enable him to avoid critiquing a scientific straw man.

Such analysis draws on remarkable ethnography. Montoya conducted extensive participant observation in multiple sites of an international diabetes research consortium. This research yields data on geneticists’ daily practice in offices in Chicago, DNA sample collection along the U.S.-Mexico border, and diabetes research conferences, as well as the resulting documents such as grant proposals. Linking rich ethnography with equally rich analysis, Montoya shows readers how interactions in these sites illustrate widely varying uses and even critiques of ideas of race which ultimately, because of broader social forces, revivify ideas of human difference that perpetuate inequality. Montoya clearly situates himself in the work, discussing his intellectual and social background and its relationship to the development of his project; graduate students designing their own fieldwork will find this instructive.

This book is a must-read for scholars seeking an ethnographically grounded yet highly theoretical read on science, sickness, race and Mexicanness. It reveals relationships between race, science, and context that should be widely understood, and Montoya expresses hope that a broadly interdisciplinary readership might apply these insights. However, this aim of applicability might be thwarted by the book’s impressive but dizzying linkage of analyses to relevant theories from multiple disciplines, as well as its inclusion (especially in the introduction) of rafts of provocative questions that will not be explicitly answered. Somewhat ironically, given Montoya’s engaging discussion of a geneticist critiquing an ethnography of science’s emphasis on “philosophy shit” (p. 128), this work uses high-level theory in a way that will excite social scientists but overwhelm others. While excerpts (especially the engaging sections analyzing rich ethnography) would be useful for undergraduate classes on medical and cultural anthropology, race…

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Making the Mexican Diabetic: Race, Science, and the Genetics of Inequality

Posted in Anthropology, Books, Health/Medicine/Genetics, Latino Studies, Media Archive, Monographs, United States on 2014-09-29 20:18Z by Steven

Making the Mexican Diabetic: Race, Science, and the Genetics of Inequality

University of California Press
March 2011
282 pages
Hardcover ISBN: 9780520267305
Paperback ISBN: 9780520267312

Michael J. Montoya, Professor of Anthropology, Chicano/Latino Studies & Public Health
University of California, Irvine

This innovative ethnographic study animates the racial politics that underlie genomic research into type 2 diabetes, one of the most widespread chronic diseases and one that affects ethnic groups disproportionately. Michael J. Montoya follows blood donations from “Mexican-American” donors to laboratories that are searching out genetic contributions to diabetes. His analysis lays bare the politics and ethics of the research process, addressing the implicit contradiction of undertaking genetic research that reinscribes race’s importance even as it is being demonstrated to have little scientific validity. In placing DNA sampling, processing, data set sharing, and carefully crafted science into a broader social context, Making the Mexican Diabetic underscores the implications of geneticizing disease while illuminating the significance of type 2 diabetes research in American life.

Read chapter 1, “Biological or Social Allelic Variation and the Making of Race in Single Nucleotide Polymorphism– Based Research” here.

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Study reveals the mysterious ancestors of modern Europeans

Posted in Articles, Europe, Health/Medicine/Genetics, Media Archive on 2014-09-18 20:24Z by Steven

Study reveals the mysterious ancestors of modern Europeans

The Washington Post
2014-09-18

Gail Sullivan, Reporter

Some had dark skin and blue eyes.

Some had light skin and brown eyes.

And no one is sure what some others looked like.

But, according to a new study of ancient human genomes, three very different populations got together seven millennia ago and made modern Europeans.

“The surprising finding was that present-day Europeans trace their ancestry back to three and not just two ancestral groups as previously thought,” said study co-author Alan Cooper, the director of the Australian Centre for Ancient DNA, in a press release.

Until now, scientists couldn’t fully explain the gene pool of modern Europe. Clues from archaeological research and previous genetic comparisons suggested most Europeans descended from Middle Eastern farmers who migrated to Europe about 7,500 years ago and interbred with local hunter-gatherers.

“Ancient human genomes suggest three ancestral populations for present-day Europeans,” said the article, published Thursday in the journal Nature

Read the entire article here.

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