Mixed Race Studies

The Enculturated Gene: Sickle Cell Health Politics and Biological Difference in West Africa

Princeton University Press
2011
368 pages
6 x 9; 7 halftones. 1 line illus. 4 maps
Paper ISBN: 9780691123172
Cloth ISBN: 9780691123165
eBook ISBN: 9781400840410

Duana Fullwiley, Associate Professor of African and African American studies and of Medical Anthropology
Harvard University

In the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell “mild” in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care.

Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal’s health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists’ attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population’s measured biological success.

The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined–and obscured–the nature of this illness in Senegal today.

Table of Contents

• List of Illustrations
• Preface
• Acknowledgments
• Chapter One: Introduction: The Powers of Association
• Chapter Two: Healthy Sicklers with “Mild” Disease: Local Illness Affects and Population-Level Effects
• Chapter Three: The Biosocial Politics of Plants and People
• Chapter Four: Attitudes of Care
• Chapter Five: Localized Biologies: Mapping Race and Sickle Cell Difference in French West Africa
• Chapter Six: Ordering Illness: Heterozygous “Trait” Suff ering in the Land of the Mild Disease
• Chapter Seven: The Work of Patient Advocacy
• Conclusion: Economic and Health Futures amid Hope and Despair
• Notes
• References
• Index

Racial identity and the spatial assimilation of Mexicans in the United States

Social Science Research
Volume 21, Issue 3 (September 1992)
pages 235-260
DOI: 10.1016/0049-089X(92)90007-4

Douglas S. Massey, Henry G. Bryant Professor of Sociology and Public Affairs
Princeton University

Nancy A. Denton, Professor of Sociology
Center for Social and Demographic Analysis
State University of New York, Albany

Mexico’s national ideology holds that Mexicans are mestizos, a racially mixed group created by the union of Europeans and Indians. When Mexicans migrate to the United States, this mixed racial identity comes into conflict with Anglo-American norms that view race dichotomously, as Indian or white but not both. In this paper we examine the process of ideological assimilation by which Mexicans in the United States shift their identities from mestizo to white, and then measure the effect that race has on the level of residential segregation from non-Hispanic whites. Although residential barriers are not as severe for mestizos as for Hispanics of African heritage, we find that mestizos are significantly less likely than white Mexicans to achieve suburban residence and that this fact, in turn, lowers their probability of contact with non-Hispanic whites.

Read or purchase the article here.